SHINE Syndrome Foundation

The SHINE Syndrome Foundation, based in Pleasant Grove, Utah, is a dedicated nonprofit organization committed to advancing the understanding and treatment of SHINE Syndrome. Founded with a mission to support individuals and families affected by this rare genetic condition, the foundation is at the forefront of research, advocacy, and education. By collaborating with leading researchers, medical professionals, and a global network of stakeholders, the SHINE Syndrome Foundation aims to uncover groundbreaking treatments and ultimately find a cure. Our approach is comprehensive, combining scientific innovation with heartfelt community support, ensuring that every person impacted by SHINE Syndrome has access to the resources and care they need.

At the heart of the SHINE Syndrome Foundation is our unwavering commitment to those we serve. We provide a range of vital services, including funding for cutting-edge research, offering educational resources, and fostering a supportive community for families and individuals living with SHINE Syndrome. Through our dedicated efforts, we aim to raise awareness about this condition and advocate for policies that enhance the quality of life for those affected. The SHINE Syndrome Foundation stands as a beacon of hope and support, driven by a passionate team dedicated to making a tangible difference in the lives of countless individuals and their families.